BBQThe next children’s event will be a BBQ at Kath’s house near Wymondham on Saturday 15th June. Starts at 3pm. Contact Kath for more details (kathamblin@talktalk.net).


Our next children’s event is on Saturday 20th April at Wroxham Barns, meeting outside the main cafe from 2pm.

wroxham barnes logobeer-pumpsnorwichforum

 

 

 

We will then be meeting at the Queens Head pub, Hethersett on Thursday 16th May from 7.30pm.

Please put Sunday 15th September in your diary – we will be holding a stall at the Forum in Norwich.


The regular Support Group meeting takes place at the Norfolk & Norwich Hospital on Tuesday March 12th, from 7pm to 9pm in Room 12 in the Education block.

Norfolk and Norwich University HospitalPark in the In-Patients East car park, the Education block is in the East Atrium level 1.

Hope to see plenty of you there!

My Life With Eczema


My daughter wrote this recently to describe what is it like for her having eczema.

I have had eczema as long as I can remember.  My mum says I have had eczema since I was a baby.  I live near Wicklewood and I am seven years old.  I have suffered from eczema itch for about six years.

I like dancing to the music, when I have got time, writing stories and drawing.

Mummy says I have normal eczema, but I have very dry skin when I itch it.  Creams with paraffin in makes my eczema worse.  I used to put on Doublebase, Hydramol and steroid ointments.  They all have paraffin in.  Morning and night I used to put on all these creams.  I got cold in the winter.  When my eczema is bad it feels sore.  I sometimes scratch until my eczema bleeds badly.  Then it feels really sore.

My eczema sometimes affects my life.  When my rabbits come in to the house to  have a run, my eczema goes nuts!  I thought having eczema was horrid, but I have more time with mummy and daddy.  Now I like having eczema because my friends’ mums and dads care about me too.

I do have another allergy, but I don’t think it has anything to do with eczema.  I am allergic to dust (hay, animal fur).  I went to Melsop Farm and sat on some hay.  I held a guinea pig but it went down the back of the hay!  The staff broke all the hay up and all the dust came all around me.  All under my chin was red and lumpy and itchy.  Daddy said we had to go home straight away.  I didn’t want to, but I had to.  When I got home I had a shower.  After that my face calmed down.  I watched TV to try and forget about my rash.

The creams that have worked for me are (not with paraffin in):  Johnson’s Baby Nourishing lotion, Johnson’s baby intense moisture cream, and Arbonne Baby Care (ABC) body lotion.

I rely on mummy and daddy for help, e.g. telling me not to itch when I don’t notice I’m itching.  I also rely on my nanas, granddads, aunties and uncles.

When I used to go to swimming lessons, before and after, me and mummy put hydramol on me.  My swimming teacher thought I was really greasy!  Once, when I was asleep in bed, I scratched and scratched until my right knee didn’t stop bleeding.  When I woke up I thought that I was going to get a really bad telling off.  But thankfully I didn’t.

My dream is when I get older that I will not have eczema again.  It will be outstanding if I lose my eczema now.  My eczema is really good now.  It does not itch at all.  My eczema places are:  elbow, wrists, under my knees, ankles, neck and I used to have eczema in my head and on my face.  I will be delighted when my eczema goes, then I will be the same as my friends!


There’s a lot planned for 2013 with the Norfolk & Norwich Eczema Support Group…

Adult Meetings (children welcome also) take place at the Norfolk & Norwich Hospital, Room 12 of the Education Block behind the WRVS shop in the East Atrium Level 1. Park in the in-patients east car park. They start at 7pm and end about 9pm.

Tuesday 12th MarchNorfolk and Norwich Eczema logo.jpg

Tuesday 11th June

Tuesday 10th September

Tuesday 3rd December

Children’s Events

Saturday 20th April – Wroxham Barnes, 2pm – 5pm. Meet in the quad by the cafe.

Saturday 15th June – BBQ at Kath’s house. More details near the time.

December – Trip to panto to see Cinderella. Time and date TBA.

Fundraising Events

Sunday 22nd September – Sponsored Cycle Ride. Meet at Reepham Station, Marriott’s Way.

TBA – Annual Stall at the Forum, Norwich.

Neal’s Yard Remedies


At our Support Group meeting on December 4th, Dawn Dowsett from Neal’s Yard Remedies askedneals-yard

‘Would you put petrol on your skin?’

Read more about it here.


Christmas_TreeThe children’s Christmas party is on Saturday 1st December at the Central Hall in Wymondham between 3 and 5pm. This event is FREE and is open to all children, not just members of the support group so you can bring along some friends! The Matrix disco is providing the Entertainment.

This party has been paid for by fund raising throughout the year so we’re looking forwards to seeing lots of you there.

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